Team Uma Booma!
Nishant, Uma, Maya and I are thrilled to be a part of the 9th Annual Hope & Heroes Walk on Sunday, May 20th, 2018 to support children with cancer and blood disorders and their families.
The Division, located at NewYork-Presbyterian Morgan Stanley Children's Hospital, is one of the largest and most distinguished centers for children with cancer and blood disorders in the country and that's the reason we choose them to treat Uma's Langerhans Cell Histiocytosis (LCH).
Langerhans cell histiocytosis (LCH) is the most common of the histiocytic disorders and occurs when the body accumulates too many immature Langerhans cells, a subset of the larger family of cells known as histiocytes. Langerhans cells are a type of white blood cell that normally help the body fight infection. In LCH, too many Langerhans cells are produced and build up in certain parts of the body where they can form tumors or damage organs. The cause of this disease is unknown. Scientific discussions on the definition of LCH continue to be debated in terms of its classification as either an immune dysfunction or a rare cancer (neoplastic and malignant or not malignant). There remain differing opinions among experts as to whether it is definitively a cancer or not...but one thing is for sure: it sucks!
LCH is believed to occur in 1:200,000 children, but any age group can be affected, from infancy through adulthood. In newborns and very young infants, it occurs in 1-2 per million (which only proved further that Miss Uma Booma is definitely one in a million...in so many ways)! Sadly, it occurs most often between the ages of 1-3 years (making it a child's disease to fight) and may appear as a single lesion or can affect many body systems, such as skin, bone, lymph glands, liver, lung, spleen, brain, pituitary gland and bone marrow.
Thankfully, most patients with LCH will survive this disease! However, patients with LCH usually undergo chemotherapy and have long term follow-up care to detect late complications of the disease or treatment. These may include problems of skeletal deformity or function, liver or lung problems, endocrine abnormalities, dental issues or neurological and neurocognitive dysfunction. Meaning: Families and Patients need long-term treatment and support for LCH which is wonderfully provided by the Division of Pediatric Hematology, Oncology & Stem Cell Transplantation at Columbia University Medical Center! With your help, Hope & Heroes can continue supporting the patients, programs and research at the Division of Pediatric Hematology, Oncology & Stem Cell Transplantation at Columbia University Medical Center.
The Division, located at NewYork-Presbyterian Morgan Stanley Children's Hospital, is depending on us to make sure their unique programs are available to all the children they treat and that their scientists keep working until they find a cure.
To read more about why we walk; please check out: http://hopeandheroes.org/why-we-walk-team-uma-buma/
Consider giving (if you can )- or please consider joining my team and walking with us. We want to make this walk the biggest one yet! The Walk takes place at beautiful Pier 84 (West 44th St. at the Hudson River) and is an inspiring and fun day for the whole family.
Thank you again for all your love and support!