Welcome To Our Team Page
JOIN US FOR A KID FRIENDLY WALK & A FUN PICNIC DAY BY THE HUDSON.
WHEN: MAY 21ST 2017 @ 9AM - WALK BEGINS AT 10AM
WHERE: Pier 84 (West 44th St. by the Hudson River)
WHAT TO BRING: GREEN OR CAMOUFLAGE COLORS AND GOOD SPIRIT
FOOD, FUN KID'S ACTIVITIES, PHOTO BOOTH, GIVE AWAYS AND MORE!
WHY WE WALK?
Some people never meet their hero in life. I gave birth to mine...
Liam was born in April of 2011, my second baby and the perfect complement to his big sister Audrey, we enjoyed our happiness for just a few weeks... Little that I know that my whole world was about to fall apart...
My journey starts when Liam was only 6 weeks old. Unexplained fevers, skin rashes & stomach problems quickly evolved into bloodwork showing signs of infeccion and with the effort of finding out where it was coming from, he had spinal taps, catethers in the bladder, bone marrow aspiration, biopsies from different organs, and many more procedures to place permament cetethers in his chest to replace IVs from collapsed veins. At 3 months old he was on life support, he had his stomach constantly succioned, he had zeisures, liver failure and while tied up to a PICU bed, Liam seemed to be clinging to life with all he got.
All I wanted was to hold him in my arms and tell him mommy is here and everything will be ok. One morning I was introduced to this horrible agressive genetic blood disorder called HLH, in which the immune system attacks healthy cells in the body, if treated in time, there is a chance of survival and I was holding on to that small percentage of hope of survival because it was all I had. After that ER visit we did not go back home for 8 months straight, then we would spend one or two weeks home then back for a couple of months at the Oncology/ Hematology and Bone Marrow Transplantation Unit, many holidays and birthdays went by and my heart was crushed having a sick child at the hospital and being separated from my healthy daughter at home.
Today, 5 years later...Many cycles of chemo, steroids, gastric tube placements, bone marrow transplant, mesenchymal stem cell treatments, GVHD in the skin and gut, 18 surgeries and procedures later... we can say WE KICKED HLH IN THE BUTT! All those broken dreams, more than 3 years of hospital life, hair loss, sleepless nights, ambulance rides, two blue codes, physical scars and spiritual scars, endless tears and hoarse cries... they are all part of our past now.
Little Liam is BIG LIAM now and we can finally say we are done with this extremely difficult, butt kicking life lesson.
This child whose physical being became a battle ground, who entered the battle and won, and those scars and his character are the spoils, he is no longer a simple boy, he is a warrior, HE IS MY HERO... HE IS MY LIAM.
Everything in life it's a learning experience. I am sharing mine to raise HLH awareness and to encourage Bone Marrow Donor registries, it is my mission and my way to give back to life.
SO THIS MAY 21ST JOIN LIAM'S ARMY AT THE HOPE & HEROES WALK, IT'S GOOD FOR THE SOLE!!!
Stay healthy and love your life!
Mercedes Bazan (MOM)