Welcome to Kathy's Touch Team!
Dear family and friends,
On May 27 2015, we were affected directly by pediatric cancer when our little princess Katherine with only 18 months old was diagnosed with AML leukemia. This unexpected diagnosis was a reminder of how unexpected life can be. We could not believe the diagnosis went from a harmless virus to a life-threatening disease. It was a very, very scary moment, for us but were not about to give up on our little princess. Kathy was always a happy and healthy baby. Our life changed so drastically one day we were at the zoo having fun as a family the next day we were at the New York-Presbyterian Morgan Stanley Children's Hospital Oncology Department discussing what procedures Kathy had to go through in the days to come.
It was overwhelming knowing that our little princess had to go under anesthesia to get biopsies, chemotherapy, radiation and the placement of a PICC line (catheter that goes under the skin directly in a mayor vein) in her chest.
It was the beginning of a very difficult journey, full of ups and downs and many changes. I had to leave my job to stay in the hospital with my little princess. Our son stayed with “Abuela”. He did come to visit and play with Kathy on weekends. My husband had to go to work but would come spend time with us every day. Although Kathy was sick, she never stopped smiling! Even through the worst moments, we felt blessed. Even though she could not understand much of what was going on, somehow she knew she had to be brave. She became mommy and daddy’s little warrior for months to come.
Sadly, after the first round of treatment, the doctors realized that Kathy was not in remission. As unique as she was to us, so were her genes. Her chromosomes had mutations that no one else in the world had. This made it very hard for the doctors to find medicine that was right for her. After 3 rounds of chemotherapy, 6 rounds of intrathecal (chemotherapy in the spine) and 3 rounds of radiation, the Leukemia and Chloromas (conjunction of cancer cells) failed to go away. When there was nothing left to do, as parents we had to make the very difficult decision to stop treatment and take our princess home. For the rest of the time, we dedicated ourselves to creating even more happy memories together. Instead of sadness, we gave her joy. Instead of crying, we gave her laughs. And, instead of sorrow, she received our relentless, unconditional love.
Thursday, October 22, 2015 after a journey of 149 days our princess Katherine finally got to rest. On that day we became the proud parents of one of heaven’s little angels, a soul too precious for this earth. This meant no more pain, no more doctors, no more medicine, and no more suffering for our precious Lady K. Though we grieve the loss of her beautiful, strong-willed, silly, charismatic, and loving presence, we are compelled to reach out to families who find themselves in similar situations. We testify to the fact that this arduous journey would have been even more difficult if not for the tremendous support we have received. Our hearts are and will forever be grateful for those who played the role of being the silver lining in our cloud. In sharing our story, we wish that our precious Katherine continues to touch as many lives as she did while in our presence.
In loving memory our daughter Katherine Alexandra we are thrilled to be a part of the 10th Annual Hope & Heroes Walk on Sunday, May 19th, 2019, at Pier 62/63 to support children with cancer and blood disorders and their families.
Hope & Heroes funds the life-saving work on childhood cancer and blood disorders at Columbia University Irving Medical Center – including cutting-edge research, support for families, and care that always puts children first. Columbia is home to the largest and most comprehensive pediatric oncology & blood disorder programs in the country, treating over 1,500 patients a year with high-quality, compassionate care.
Funding from Hope & Heroes provides for over 40% of the Division’s budget including the newest & most advanced treatments, innovative research, comprehensive wellness for patients & survivors, and ensures that every child, regardless of their ability to pay, gets the very best care.
Over the last 10 years, the Hope & Heroes Walk has raised over $2.5 Million dollars to dramatically affect the lives of pediatric cancer & blood disorder patients and has shared the importance of this cause with thousands of people. With your help, we can ensure that every patient receives excellent care and that they, along with their family, feel supported from the day of diagnosis, throughout treatment, and beyond.
Donate today and help make a difference. Consider joining my team and walking with us! The Walk is an inspiring & fun day with incredible energy that brings together patients, survivors, families, friends, doctors, nurses, co-workers, and neighbors - it’s truly not to be missed.
Thank you again. Together we will help children today and save lives tomorrow.
The Segura family
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